Braylin came into this world 6.21.14 and I never thought I would have a child with a special condition. Today, I reflect on Braylin’s almost seven years on this earth. How is it possible this little miracle turned into a strong, fierce, independent child? Bray had a collodion membrane, inverted eyes, plastic like skin, I couldn't touch her for days unless it was with a glove. Vermont wasn’t prepared and neither was I. I remember asking why.... why did this happen? Did I do something wrong during my pregnancy? Would she be bullied? Would she ever have a "normal" life? Today my answer is, normal is boring! She has inspired so many by being different. She tells people about her condition without skipping a beat. My butterfly baby is one of the strongest kiddos I know!

FIRST helped when ichthyosis challenged me the first few years with infection, ear issues, scalp, constant skin everywhere!


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Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officals endorse any treatments listed here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.

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