Join the National Registry for Ichthyosis and Related Skin Types

Purpose: The Registry serves as a central resource to connect individuals with ichthyosis to relevant clinical trials and researchers studying specific ichthyosis types.

Benefits: The registry can provide a free genetic diagnosis for most individuals, and can notify affected individuals/families of new opportunities to participate in research and clinical trials if requested.

Enrollment:  To enroll in the registry , please email ichthyosisregistry@yale.edu

Find out more at National Registry for Ichthyosis and Related Skin Disorders Frequently Asked Questions.