Join the National Registry for Ichthyosis and Related Skin Types

Purpose: The Registry serves as a central resource to connect individuals with ichthyosis to relevant clinical trials and researchers studying specific ichthyosis types.

Benefits: The registry can provide a free genetic diagnosis for most individuals, and can notify affected individuals/families of new opportunities to participate in research and clinical trials if requested.

Enrollment:  To enroll in the registry , please email

Find out more at National Registry for Ichthyosis and Related Skin Disorders Frequently Asked Questions. 

Have you already received your genetic diagnosis? Let FIRST know so thatwe can keep you better informed about studies and information specific to your genetic type. Click here to provide your update.
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