Join the National Registry for Ichthyosis and Related Skin Types
Purpose: The Registry serves as a central resource to connect individuals with ichthyosis to relevant clinical trials and researchers studying specific ichthyosis types.
Benefits: The registry can provide a free genetic diagnosis for most individuals, and can notify affected individuals/families of new opportunities to participate in research and clinical trials if requested.
Enrollment: To enroll in the registry , please email email@example.com
we can keep you better informed about studies and information specific to your genetic type.