Latest News and Events
Latest News
.png)
November 10, 2022 - Contact your Members of Congress TODAY and urge them to support reforms to improve research and development for rare diseases treatments in any end-of-year spending bill
Continue Reading…
November 07, 2022 - Terry and Robert Melton have created The Weary Fund through a generous contribution.
Continue Reading…
1.png)
November 03, 2022 - This article discusses ichthyosis and how it’s linked to cancer. The write-up also briefly explores the various cancer types that can cause ichthyosis.
Continue Reading…
2.png)
November 02, 2022 - patients with palmoplantar keratoderma associated with pathogenic variants in the FLG gene and as a part of ichthyosis vulgaris spectrum.
Continue Reading…
November 01, 2022 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices.
Continue Reading…
Upcoming Events
