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"Becoming an Empowered Patient" Webinar

January 26, 2021 - Webinar hosted by NeedyMeds
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Global Genes - Compassionate Care Program

January 26, 2021 - U.S based medical students with rare disease patients and families to help foster meaningful doctor-patient relationships,
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Clinical Research in 2021: A New Era of Collaboration and Innovation

January 25, 2021 - The clinical research community has been disrupted in a number of ways due to COVID-19 and sparked a spirit of collaboration and innovation.
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Three Pillars of Mental Health: Good Sleep, Exercise, Raw Fruits and Veggies

January 20, 2021 - Getting good quality sleep, exercising, and eating more raw fruits and vegetables predicts better mental health and well-being in young adults, a study has found.
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NORD's Listing of Financial Resources for Rare Disease

January 19, 2021 - The following links and resources may be useful to patients and families looking for medication assistance and financial information.
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