FIRST Awareness Spirit Items & Publications
FIRST has exciting items available to create awareness! These items are designed to be useful in your daily life and also create awareness about FIRST and ichthyosis. All amounts listed are to cover costs and shipping charges. (For international shipping, please contact the FIRST office to arrange for payment of additional postage.)
FIRST Silicone Bracelet Imprinted with FIRST's mission; Educate, Inspire, Connect. One size fits all. $1.50 (includes shipping cost) (click here to view a larger image of the silicone bracelet)
FIRST offers its printed and educational publications at no cost. The price listed on all printed and educational materials is to cover the shipping costs.
Ichthyosis: An Overview An overview of ichthyosis; descriptions of the primary types of ichthyosis; some frequently asked questions. 15 pages.$1.00
Ichthyosis: An Overview (Español) An overview of ichthyosis; descriptions of the primary types of ichthyosis; some frequently asked questions. 15 pages. $1.00
Ichthyosis: The Genetics of Its Inheritance A description of the genetic inheritance patterns for the different forms of ichthyosis: autosomal dominant, autosomal recessive, and X-linked recessive. With illustrations. 15 pages. $1.00
Release the Butterfly: A Handbook for Parents & Caregivers of Children With Ichthyosis A comprehensive care-giving guide for anyone caring for a young child with ichthyosis. Covers everything from the neonatal intensive care unit to breast feeding; from creams and lotions to systemic retinoid therapy; from nutrition to overheating; from siblings to grandparents. 60 pages. $1.50
Release the Butterfly: A Handbook for Parents & Caregivers of Children With Ichthyosis (Español) $1.50
Ichthyosis: A Guide for Teachers A tool for parents to help make the transition to the school environment for children with ichthyosis. Includes most (if not all) key information the teacher, school nurse, guidance counselor, and P.E. instructor should need to know about their student with ichthyosis. 40 pages. $1.50
Life with Ichthyosis: A Teenage Perspective (DVD) Provides an upbeat, positive message for all affected individuals and their families on what it's like to grow up with ichthyosis. $1.50
Awareness Card An easy-to-carry card (about the size of a business card) that can be used to provide information to curious people that you may meet.
$.75 for 20 cards