Site Map
About Us
- Mission Statement/Core Values
- History
- Annual Report & Financials
- Board of Directors
- Medical & Scientific Advisory Board
- Staff
- Fundraising
- Press Room
- FIRST Awareness Spirit Items & Publications
- Contact FIRST About Ichthyosis
- What is Ichthyosis?
- New Parent Information
- Publications for Managing Ichthyosis
- Physician Referral Service
- Resources
- Tools & Tips for Living with Ichthyosis
- Financial Aid
- Frequently Asked Questions
- Glossary
- Newly Diagnosed? News & Events
- National Conferences
- Grassroots Fundraising Research
- Ichthyosis Registry
- Clinical Trials & Patient Recruitment Opportunities
- FIRST Research Grant Program
- FIRST-Funded Research Projects
- Ichthyosis Related Research Articles For Medical Professionals
- TeleIchthyosis
- Ichthyosis Registry
- NICU Care
- Medical Presentations
- Medical & Scientific Advisory Board Get Involved
- Volunteer Opportunities
- Ichthyosis Awareness Month
- Advocate
- Corporate Involvement
- Other Ways to Help
- Plan an Event Ways to Connect
- Volunteer Opportunities
- Support Services
- National Conferences
- Patient Support Forums
- FIRST to Know Conference Calls
- Meet Our Families News Listings
- National Organization for Rare Disorders Advocacy Tool Kit
- Q & A - March 31st E-News
- Transforming Rare Disease Treatment
- Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day
- Why We Need Research into the Mental Health Impact of a Rare Disease Diagnosis Upcoming Events
- FIRST National Conference 2022-Providence
