Site Map
About Us
- Mission Statement/Core Values
- History
- Annual Report & Financials
- Board of Directors
- Medical & Scientific Advisory Board
- Staff
- Fundraising
- Press Room
- FIRST Awareness Spirit Items & Publications
- Contact FIRST About Ichthyosis
- What is Ichthyosis?
- New Parent Information
- Publications for Managing Ichthyosis
- Physician Referral Service
- Resources
- Tools & Tips for Living with Ichthyosis
- Financial Aid
- Frequently Asked Questions
- Glossary
- Newly Diagnosed? News & Events
- National Conferences
- Grassroots Fundraising Research
- Ichthyosis Registry
- Clinical Trials & Patient Recruitment Opportunities
- FIRST Research Grant Program
- FIRST-Funded Research Projects Medical Professionals
- Physician Referral Service
- TeleIchthyosis
- Ichthyosis Registry
- NICU Care
- Medical & Scientific Advisory Board Get Involved
- Volunteer Opportunities
- Ichthyosis Awareness Month
- Advocate
- Corporate Partnerships
- Other Ways to Help
- Plan an Event Ways to Connect
- Volunteer Opportunities
- Support Services
- National Conferences
- Patient Support Forums
- FIRST to Know Conference Calls
- Meet Our Families News Listings
- Q & A - September 15th E-News - Saltwater
- Q & A - September 15th E-News - Teens
- Giving Birth While Having Ichthyosis
- Ichthyosis Resource for School Nurses and Educators
- Q & A - August 31 E-News Upcoming Events
- Milwaukee Patient Support Forum
- New Member Orientation
- FIRST to Know: Ichthyosis & College
- New Member Orientation
- Rehoboth Beach Patient Support Forum
- Ichthyosis & Laundry
- Facebook Group Chat
- New Member Orientation
- FIRST National Conference 2022-Providence
