What is Ichthyosis?

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The Ichthyosis Registry at Yale


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Who is FIRST?

Discover all the benefits of connecting with the Foundation for Ichthyosis and Related Skin Types (FIRST). Listen to what affected families, individual patients, and the medical community have to say about being a part of FIRST and taking advantage of FIRST's resources, like research grants, educational materials, and special patient-centric meetings and conferences. Learn why FIRST is the global leader in advocacy for ichthyosis and related skin types.

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Join the New GENEration

Learn more about the Ichthyosis Registry

Now is the time to GET DIAGNOSED and join FIRST in playing an important role in ichthyosis research. FIRST is co-sponsoring a transformational scientific endeavor with one of the world's leading institutions in ichthyosis research, Yale University. We encourage you to take part. The National Registry for Ichthyosis & Related Skin Disorders, "The Registry," is available to investigators worldwide, and is the largest resource of ichthyosis patient information - critical data that holds the key to better, more targeted treatments, and eventual cures. The Registry, co-sponsored by FIRST is the next evolution of ichthyosis research.