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Find a Doctor

Search our global database of dermatologists and other specialists with ichthyosis training.

Learn About Your Type

Explore the largest ichthyosis directory in the world with over 30+ Types, including name variations and genetic designations.

Get Insider Resources

Your first stop for valuable resources like financial aid, PDF guides, and genetic diagnoses.

Join the Community

Connect to our global network of individuals navigating the challenges of ichthyosis and related skin types.

Proudly Celebrating 45 Years In our Ichthyosis Community

If you or a family member has ichthyosis or a related skin type, and is in need of support, education, connection, and compassion, you have come to the right place. 

We were chartered as a nonprofit in 1981 and we are currently the leading patient advocacy organization in the world for individuals with ichthyosis and related skin disorders.

We are deeply dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types.

1981

Founded

45

Years of Impact

$2.2M

Research Funding

1,600+

Registry Participants

ACADEMIC & CORPORATE PARTNERS

Upcoming Events

Join us at one of our upcoming events!

View All Events
  • May is Ichthyosis Awareness Month
    by Foundation for Ichthyosis & Related Skin Types, Inc.

    May is Ichthyosis Awareness Month

    DATE: May 1, 2026

    DESCRIPTION: FIRST celebrates Ichthyosis Awareness Month (IAM) during the month of May each year.  Members and families join together and organize special events,…

  • 2026 National Conference
    by Foundation for Ichthyosis & Related Skin Types, Inc.

    2026 National Conference

    DATE: June 26, 2026
    LOCATION: 1300 Nicollet Mall, Minneapolis, MN, 55403

    DESCRIPTION: 2026 National Conference – Minneapolis This is a precious opportunity to connect, share, and support one another in line with…

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