In celebration of our 40th anniversary, we have updated our logo to reflect the power of the shared connections we have in the FIRST community.

With 40 years of community building to advance treatments and research of ichthyosis and related skin types, we have much to celebrate. At FIRST, each member is surrounded and supported by our community. From advice between parents, guidance from our research leaders, to welcoming new friends to FIRST, our community is resilient and purposeful. One is never alone.

Making connections and supporting individuals with ichthyosis and related skin types is at the core of everything we do. We are proud to celebrate this important milestone with you.

We are proud to celebrate 40 years of shared connections, including:
$118,290 of college scholarships disbursed
$52,615 of financial aid for skin care awarded
22,000 Members, vendors, and partners
1,600 Families enrolled in the Ichthyosis Registry at Yale
1,400 Families provided with a genetic diagnosis
20 National Conferences hosted in 15 cities
8 New genetic causes of ichthyosis discovered
FIRST Rebranding
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