FIRST offers a multitude of resources to help those affected with ichthyosis manage the disorder from day to day.  From healthy living tips, to guides for teachers and school personnel, to handy ichthyosis awareness cards., you'll have all the tools you'll need to guide you and your community along the way.

La mayoría de la información que se muestra más abajo está disponible también en español, por favor haga click aquí para verlo en español.

Ichthyosis:  An Overview
Ictiosis: Una Revision
Arabic translation

This booklet provides a general introduction to ichthyosis.

Ichthyosis:  The Genetics of its Inheritance
Ictiosis:  La Genetica de su Herencia
Arabic translation

This booklet provides an in-depth look at how ichthyosis is passed from parent to child.


Release the Butterfly:  A Handbook for Parents & Caregivers of Children with Ichthyosis
Libera la mariposa: Manual para padres y cuidadores de niños con ictiosis

Provides valuable information to parents and caregivers about caring for a person affected with ichthyosis.


A Guide for Teachers and School Personnel
Provides an overview to introduce teachers and other school personnel to  the needs of an affected student.



Awareness Card
An informational card that can be handed out to the curious, when questions are asked.



Ichthyosis Focus Newsletter
FIRST publishes a quarterly newsletter for our members, with articles about our families and the latest news and research on ichthyosis.


This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.

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