Release the Butterfly:
A Handbook for Parents & Caregivers of Children with Ichthyosis

A comprehensive caregiving guide for anyone caring for a person with ichthyosis.





Section 1

Section 2:  Beginnings

Section 3:  Practical Matters

Section 4:  Where to Turn

Section 5:  Looking Ahead

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.

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