Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast and lunch.

Meet-ups held in 2023

FIRST's 2023 One-Day Meetings are Sponsored by Beiersdorf

Meeting Held in 2021

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