Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast and lunch.

Meetings that took place in 2019:

  • Pittsburgh, Pennsylvania: May 4, 2019
  • Boise, Idaho: June 29, 2019
  • Salt Lake City, Utah: July 13, 2019
  • Toronto, Canada: July 20, 2019
  • Burlington, Vermont: CANCELLED due to low enrollment
  • Austin, Texas: August 17, 2019
  • Orlando, Florida: September 14, 2019
  • Charleston, South Carolina: September 21, 2019


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