Patient Support Forums
Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines. The meetings will include a light breakfast and lunch.
Meetings that took place in 2019:
- Pittsburgh, Pennsylvania: May 4, 2019
- Boise, Idaho: June 29, 2019
- Salt Lake City, Utah: July 13, 2019
- Toronto, Canada: July 20, 2019
- Burlington, Vermont: CANCELLED due to low enrollment
- Austin, Texas: August 17, 2019
- Orlando, Florida: September 14, 2019
- Charleston, South Carolina: September 21, 2019