Sharing tips, stories and challenges with others, makes living with ichthyosis just a little bit easier.   The FIRST Connects Video Zoom calls are a great way to “meet” other families and individuals.   Each call is centered on a topic or subject, and lasts for one hour.  These connections are especially important during these uncertain times dealing with the COVID-19 pandemic.

The most recent FIRST Connects calls have been well received by participants. It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. 

Announcement of future calls will be posted on FIRST's social media and email communications.

Upcoming Calls:

View upcoming events here

Below are the recordings of previous calls:

Lowell's message to his younger self - August 2020

Growing up with ichthyosis isn’t always easy, but the lessons learned make us stronger. Listen to Lowell Wright’s powerful message to his younger self on SoundCloud here:

Foundation for Ichthyosis · Lowell Wright- Personal Story

Coping Strategies During COVID-19 - April 1, 2020

Ichthyosis & COVID-19 - March 18, 2020

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