Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
page
news-articles
tribe_events
Donate
Home » News Articles

Latest News

Recent News

DATE: 08/28/2026

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Could curiosity help interrupt the itch-scratch cycle? A recent Dermatology Times article explores how understanding the brain’s habit loops may...

DATE: 08/24/2026

Amy S. Paller, MD

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Researchers looked at medical records to compare people with congenital ichthyosis with people in the general population. They found that...

DATE: 08/14/2026

How Ichthyosis Changes Throughout Life: What a New Study Found

How Ichthyosis Changes Throughout Life: What a New Study Found

A new international study surveyed 222 adults with different types of congenital ichthyosis to better understand how living with ichthyosis...

DATE: 08/03/2026

Diya & Aliya Friends Fund Applications Now Open

Diya & Aliya Friends Fund Applications Now Open

The Shahnaz Kraybill family realize that the fight against ichthyosis is not only medical but also financial. As families of...

DAF-ANNC-CDAF-ANNC-DDAF-ANNC-FDAF-ANNC-FALDAF-ANNC-FHDAF-ANNC-UDAF-ANNC-W

DATE: 07/07/2026

Bailey’s Broadway Birthday Bash Hits a High Note Once Again!

Bailey’s Broadway Birthday Bash Hits a High Note Once Again!

Bailey’s Broadway Birthday Bash was another success! Held on June 20, 2026, it was a celebration of Bailey Fabiano’s birthday,...

grassroots

DATE: 06/30/2026

A Life-Changing Weekend

A Life-Changing Weekend

From June 26–28, 2026, the FIRST community came together in Minneapolis, Minnesota, for an unforgettable National Conference. It was three...

conferences

DATE: 6/27/2026

From Research to Treatment: How Scientists Turn Discoveries into New Therapies

From Research to Treatment: How Scientists Turn Discoveries into New Therapies

When researchers discover a gene mutation that causes a rare skin disease, it can take many years before that knowledge...

darier diseasehailey-hailey diseaseresearch

DATE: 06/25/2026

Ichthyosis Patient Survey Executive Summary

Ichthyosis Patient Survey Executive Summary

Highlights from the first major survey of people with ichthyosisand related skin types Ichthyosis is a group of skin disorders...

DATE: 06/20/2026

Inherited Courage: Living and Thriving with Ichthyosis with Confetti

Inherited Courage: Living and Thriving with Ichthyosis with Confetti

Jordan Flake shares her journey of discovering that both she and her sons have ichthyosis with confetti (IWC). Jordan describes...

confetti

DATE:

Promising Progress for Peeling Skin Syndrome

Promising Progress for Peeling Skin Syndrome

There is encouraging news for individuals and families affected by Peeling Skin Syndrome (PSS), a rare genetic skin disorder that...

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

About Us

History Our People Annual Report & Financials Press Room

News & Events

Recent Articles Privacy & Permissions

Contact Us

Foundation for Ichthyosis & 
Related Skin Types, Inc.

PO Box 1067, Lansdale, PA 19446

(800) 545 - 3286

info@firstskinfoundation.org

EIN: 94-2738019

Social

Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.