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DATE: 05/28/2026

DermGPT and the Expanding Role of AI in Clinical Practice

DermGPT and the Expanding Role of AI in Clinical Practice

Author(s)Maddi Hebebrand, MC, Associate Editor The article explains that AI tools like DermGPT are starting to become part of everyday...

DATE: 05/26/2026

A Wig, A Mirror, and a Moment of Joy

A Wig, A Mirror, and a Moment of Joy

Creating Inclusive Beauty Experiences for Children with Ichthyosis A recent story shared by People captured a powerful reminder that inclusion...

harlequin

DATE: 5/15/2026

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

We’re proud to celebrate Laura’s continued advocacy through her recent presentation at the BEDS (Bedside Excellence Development Series) at Northwestern,...

advocacy

DATE: 5/8/2026

Approval Received for Ammonium Lactate Cream

Approval Received for Ammonium Lactate Cream

Zydus Lifesciences recently received final approval from the U.S. Food and Drug Administration (USFDA) for its 12% Ammonium Lactate Cream,...

DATE: 5/08/2026

Recipient of the Perseverance Award

Recipient of the Perseverance Award

Nine-year-old Zoe Ng of Singapore, who lives with harlequin ichthyosis, was recently honored with the Perseverance Award at the AWWA...

DATE: 5/1/2026

Applications Now Accepted for Weary Air Conditioner Fund

Applications Now Accepted for Weary Air Conditioner Fund

Terry and Robert Melton have created The Weary Fund through a generous contribution in honor of Terry’s parents, Dr. Peyton...

Weary-Annc-CWeary-Annc-DWeary-Annc-FWeary-Annc-FALWeary-Annc-FHWeary-Annc-OWeary-Annc-UWeary-Annc-W

DATE: 05/01/2026

FIRST-Aid Skin Care Fund Applications Now Open

FIRST-Aid Skin Care Fund Applications Now Open

FIRST-Aid is a program created to help provide meaningful support to individuals affected with ichthyosis in the management of their...

FIRST-Aid-Annc-CFIRST-Aid-Annc-DFIRST-Aid-Annc-FFIRST-Aid-Annc-FALFIRST-Aid-Annc-FHFIRST-Aid-Annc-UFIRST-Aid-Annc-W

DATE: 4/22/2026

Why Ichthyosis Research Matters and Why Participation is Key

Why Ichthyosis Research Matters and Why Participation is Key

For individuals and families affected by ichthyosis, research is more than science, it’s hope. Ongoing studies and clinical trials are...

DATE: 4/20/2026

Immunomodulatory Therapy May Reduce Some Comorbidities in Congenital Ichthyosis

Immunomodulatory Therapy May Reduce Some Comorbidities in Congenital Ichthyosis

In plain terms:Scientists are exploring medications that “dial down” the immune system. For some people with ichthyosis, this may improve...

DATE: 03/05/2026

FIRST

Phase 3 Setback for TMB-001 Spurs Hopeful Out-Licensing of Vehicle in Congenital Ichthyosis

Phase 3 Setback for TMB-001 Spurs Hopeful Out-Licensing of Vehicle in Congenital Ichthyosis

You asked for it and they listened! Update on TMB-001: A Setback — But Not the End of the Story...

TMB-001

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.