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DATE: 06/30/2026

A Life-Changing Weekend

A Life-Changing Weekend

From June 26–28, 2026, the FIRST community came together in Minneapolis, Minnesota, for an unforgettable National Conference. It was three...

conferences

DATE: 6/27/2026

From Research to Treatment: How Scientists Turn Discoveries into New Therapies

From Research to Treatment: How Scientists Turn Discoveries into New Therapies

When researchers discover a gene mutation that causes a rare skin disease, it can take many years before that knowledge...

darier diseasehailey-hailey diseaseresearch

DATE: 06/25/2026

Ichthyosis Patient Survey Executive Summary

Ichthyosis Patient Survey Executive Summary

Highlights from the first major survey of people with ichthyosisand related skin types Ichthyosis is a group of skin disorders...

DATE: 06/20/2026

Inherited Courage: Living and Thriving with Ichthyosis with Confetti

Inherited Courage: Living and Thriving with Ichthyosis with Confetti

Jordan Flake shares her journey of discovering that both she and her sons have ichthyosis with confetti (IWC). Jordan describes...

confetti

DATE:

Promising Progress for Peeling Skin Syndrome

Promising Progress for Peeling Skin Syndrome

There is encouraging news for individuals and families affected by Peeling Skin Syndrome (PSS), a rare genetic skin disorder that...

DATE: 06/12/2026

New Research Reassures Families: Isotretinoin Does Not Appear to Affect Adult Height

New Research Reassures Families: Isotretinoin Does Not Appear to Affect Adult Height

For years, families and healthcare providers have wondered whether isotretinoin (commonly known by brand names like Accutane) could affect growth...

DATE: 05/28/2026

DermGPT and the Expanding Role of AI in Clinical Practice

DermGPT and the Expanding Role of AI in Clinical Practice

Author(s)Maddi Hebebrand, MC, Associate Editor The article explains that AI tools like DermGPT are starting to become part of everyday...

DATE: 05/26/2026

A Wig, A Mirror, and a Moment of Joy

A Wig, A Mirror, and a Moment of Joy

Creating Inclusive Beauty Experiences for Children with Ichthyosis A recent story shared by People captured a powerful reminder that inclusion...

harlequin

DATE: 5/15/2026

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

We’re proud to celebrate Laura’s continued advocacy through her recent presentation at the BEDS (Bedside Excellence Development Series) at Northwestern,...

advocacy

DATE: 5/8/2026

Approval Received for Ammonium Lactate Cream

Approval Received for Ammonium Lactate Cream

Zydus Lifesciences recently received final approval from the U.S. Food and Drug Administration (USFDA) for its 12% Ammonium Lactate Cream,...

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.