What's Your Story? We'd Love to Hear It!

Here is your opportunity to get to know our truly remarkable families and share their inspiring stories.

Will W. - Mountain Lakes, NJ

I didn't know much about ichthyosis when we learned Will had this disease, but over the years both he and us have learned a lot about the disease how to care for him, and how to overcome some of the challenges it creates.

(Read Will's story)

Sarah and Alex - Bloomington, MN

Ichthyosis: A Family Story - Read the perspective of Sarah's mother, Sarah, and Sarah's son Alex.

(Read Sarah and Alex's story)

Christine - Albuquerque, NM

At the FIRST’s National Conference in San Diego, my doubts increased, but my determination to discover why my skin differed from most other people's skin remained strong.

(Read Christine's story)

Jelani - Raleigh, NC

Jelani, a member of FIRST, graduated from college in December with his eyes on an exciting future in his chosen field, Bioengineering.

(Read Jelani's story)

Ahmed - Yemen

What I can do is just to support my children how to deal with people teasing, laughing or walking away from them.

(Read Ahmed's story)

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