Ana K. - Belgrade, Serbia - 2019
Pick a point in your life and write about your challenges or successes.
Hi everyone. I am from Serbia and I have ichthyosis and I feel like I am the only person in my county with it. I was born with ichthyosis and I am the only member in my family with this skin problem. My ichthyosis type is mild and now my skin is OK and many people do not know my problem because they cannot see it on my face. Now, I am 25 years old, I have normal life with friends and a boyfriend. Additionally, I am biologist and I want to research genetical base of this disorder because I want to know whether my children will have it too. Doctors are going to do sequencing of my genome and so that I can know the probability of ichthyosis for my kids. When I was younger I had problems with kids, they did not want to be in contact with me, they avoided me etc. Now, I am self-confident, successful in my job and satisfied with my life.
How has FIRST impacted your life? Before FIRST I did not know people around the world had the same problem like me!
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This information is provided as a service to patients and parents of patients who have ichthyosis. It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents. Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here. All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.