Pick a point in your life and write about your challenges or successes.

On April 13th, I got to run the Ville to Ville Relay Race with some of my running friends. Ville to Ville is a 75 mile, relay race that goes from Asheville, North Carolina to Greenville, South Carolina. Picture yourself and 5 of your friends (plus a driver) all in a van as you take turns running up and down a ton of hills! Each of the runners runs twice and my two legs were 5.28 miles and 4.85 miles respectively. I didn't train as well as I normally would have for a race because I came down with shingles halfway in my training. Thankfully I caught it early and it cleared up much faster than expected. Anytime I run a race, I have to be mindful of the temperatures. Since I have ARCI-lamellar ichthyosis, I don't sweat so running in high heat can be dangerous for me. Thankfully, I've dealt with this my whole life so I'm pretty good at keeping cool. I made sure to pack my tank tops and shorts and I always run with plenty of water. More for splashing on my face and arms than for drinking! When I finished my legs my teammates were there to cheer me on and brought me water to dump over my head and cold, wet towels to help me cool down. I just love the feeling of accomplishment that comes with completing a race like this. Plus they're just fun! You really get to know your teammates and you get to put yourself to the test. Next up is a Half Marathon in June!

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This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.

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