X-linked and Ichthyosis Vulgaris Memory Survey
Researchers at Cardiff University, UK are looking for adult participants with a diagnosis of X-linked ichthyosis (or female XLI carriers) or ichthyosis vulgaris to complete a short (20-30mins) online survey examining aspects of memory, cognition and mood:
The eligibility criteria for our study - is open to adult (>18yrs) males with XLI, female carriers of genetic changes associated with XLI, and adults with ichthyosis vulgaris (IV) from around the world. Complete the survey via this link.
Any help you can give would be much appreciated!