Growth and Development Study
The National Registry for Ichthyosis and Related Skin Types is conducting a new study examining the effects of ichthyosis on growth and development. Your participation will help us better understand and characterize growth failure among the various ichthyosis subtypes.
If you have already enrolled in the registry and would like to participate in this study, please email the Registry’s Patient Coordinator - Mary Sun, firstname.lastname@example.org. You will be asked to complete a short electronic survey assessing physical growth and development.
If you have not already enrolled, please email the Registry’s Patient Coordinator - Mary Sun, email@example.com to enroll in the registry and to participate in this project."