Overview
Retirement brings new opportunities for rest, travel, hobbies, and personal fulfillment—but it can also mean changes in routine, income, and healthcare coverage. For individuals with ichthyosis, maintaining consistent skin care, social connection, and overall wellness remains just as important as ever.
This resource provides practical guidance for managing ichthyosis during retirement and beyond.
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Skin Health as You Age
As skin naturally thins and produces less oil with age, dryness can increase—even without ichthyosis. For those with ichthyosis, this may mean:
•    More frequent moisturizing needs
•    Greater sensitivity to soaps, fabrics, or temperature changes
•    Slower healing of small cuts or cracks
Tips for Daily Care
•    Continue moisturizing regularly—apply ointments or creams immediately after bathing.
•    Choose thicker emollients (petrolatum, ceramides, glycerin, or urea 5–10%) to maintain hydration.
•    Use gentle cleansers and avoid harsh soaps or antibacterial washes.
•    Keep skin protected—soft clothing, gloves, or socks can help prevent friction injuries.
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Routine and Lifestyle Adjustments
Leaving full-time work can change your daily schedule. Try to establish new routines that support your skin health and overall well-being:
•    Set aside time for bathing and moisturizing each day.
•    Stay physically active—movement helps circulation and overall health.
•    Get outdoors safely: Exposure to sunlight (with sunscreen) can lift mood and boost vitamin D.
•    Plan rest periods if fatigue or skin discomfort increases.
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Medical and Insurance Considerations
As you transition to retirement:
•    Review health insurance coverage for dermatology visits and prescription medications (especially if switching to Medicare or supplemental plans).
•    Ask your dermatologist for updated documentation of your condition to ensure smooth prescription refills and coverage for treatments.
•    Keep a copy of your skin care routine or medication list handy when changing doctors.
•    If moving or traveling, use FIRST’s resources to find dermatologists familiar with ichthyosis.
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Emotional and Social Well-Being
Retirement can bring both freedom and adjustment. Staying engaged and connected supports emotional health:
•    Join FIRST’s Peer Navigator Program or online community for shared experiences and friendship.
•    Explore volunteering or mentoring—many individuals find meaning in supporting others affected by ichthyosis.
•    Participate in hobbies, clubs, or gentle exercise programs that fit your comfort level.
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Managing Age-Related Health Changes
As people age, other health conditions can affect the skin or interact with ichthyosis care.
•    Arthritis or mobility challenges may make bathing or applying moisturizers more difficult—adaptive tools or caregiver help can make daily care easier.
•    Vision or dexterity changes might affect product use—choose pump bottles or wide-lid containers for easier handling.
•    New medications may cause dryness, itching, or rash—let your doctor know if skin changes occur.
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Travel and Climate in Retirement
If you plan to travel or relocate:
•    Research the local climate—humidity and temperature can affect your skin.
•    Pack your preferred moisturizers and gentle cleansers when traveling.
•    Stay hydrated, and bring extra skin care supplies if you’ll be away from home for an extended period.
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Staying Positive and Engaged
Many people find retirement to be a time of renewed purpose. Continue to:
•    Celebrate progress—acknowledge how far you’ve come managing your skin and health.
•    Share your knowledge—your lived experience can help younger individuals or families affected by ichthyosis.
•    Focus on comfort and enjoyment—your daily care routine is self-care, not just maintenance.
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Helpful Resources
•    National Council on Aging (NCOA)
www.ncoa.org – Guidance on health, benefits, and aging well
•    American Academy of Dermatology (AAD)
www.aad.org – Skin care for mature and sensitive skin
•    Medicare.gov
www.medicare.gov – Information about coverage for dermatology and prescriptions

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This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.