Date: 09/10/2025

One-Page Guide for Working Adults Living with Ichthyosis
Empowering You to Thrive at Work and Beyond

1. Skincare Routine for the Workday

• Morning Prep:
  • Apply moisturizer/emollient before dressing.
  • Use ointments or creams with urea or lactic acid (if recommended by your provider).
  • Choose loose-fitting, breathable clothes (cotton preferred).
• During the Day:
  • Keep travel-size moisturizer at your desk or in your bag.
  • Reapply as needed to exposed areas (face, hands).
  • Use humidifiers if your office air is dry.
• Evening Routine:
  • Bathe or soak to soften skin, followed by exfoliation.
  • Reapply thicker ointments before bed.

2. Navigating the Workplace

• Privacy and Comfort:
  • Use cooling cloths or fans discreetly if overheating.
  • Consider fragrance-free wipes for comfort on-the-go.
  • Bring a spare shirt or moisturizer if flaking is an issue.
• Communication Tips:
  • You are not required to disclose your condition, but consider sharing with HR if you need accommodations.
  • Sample accommodations: flexible dress code, work-from-home days, or temperature/humidity controls.

3. Self-Advocacy & Legal Rights

• ADA Protections:
  • Ichthyosis may qualify as a disability under the Americans with Disabilities Act (ADA).
  • You have the right to reasonable accommodations (see link below).
• 504 Plans (If in Higher Ed):
  • Adults pursuing education can request modifications similar to K–12 plans.
• Insurance:
  • Keep a list of medically necessary skincare products for FSA/HSA claims.
  • Track costs for potential tax deductions.

4. Mental & Emotional Wellness

• Support Matters:
  • Connect with peer communities like FIRST (Foundation for Ichthyosis & Related Skin Types). 
    • FIRST Ichthyosis Adults
    • FIRST Ichthyosis Women
  • Don't hesitate to seek therapy for stress, anxiety, or body image concerns.
• Mental Health Resources for those with ichthyosis
• Confidence Boosters:
  • Prepare a short explanation if people ask questions—e.g., “It’s a genetic skin condition, not contagious.”
  • Focus on your strengths and boundaries, not just your skin.

Helpful Links

• www.firstskinfoundation.org
• ADA Accommodations Info
• Mental Health Support