Join the New GENEration
Learn more about the Ichthyosis Registry
Now is the time to GET DIAGNOSED and join FIRST in playing an important role in ichthyosis research. FIRST is co-sponsoring a transformational scientific endeavor with one of the world's leading institutions in ichthyosis research, Yale University. We encourage you to take part. The National Registry for Ichthyosis & Related Skin Disorders, "The Registry," is available to investigators worldwide, and is the largest resource of ichthyosis patient information - critical data that holds the key to better, more targeted treatments, and eventual cures. The Registry, co-sponsored by FIRST is the next evolution of ichthyosis research.