Clinical Trials & Patient Recruitment Opportunities
Interested in Partnering with FIRST for Patient Recruitment?
Partnering with patients, and their advocates, has become the cornerstone of research in the field of rare disease. Currently many families and individuals in the FIRST community, affected with ichthyosis or a related skin type, are enthusiastically participating in clinical trials, behavioral studies, product sampling, member surveys and more. And by partnering with the FIRST community, product developers and medical investigators have a more direct opportunity to finding the key to acceleration for better treatments and eventual cures.
If you are interested in partnering with FIRST members for a research study, clinical trial, or product sampling program, please contact Madeline Bergman at email@example.com.
Current Patient Recruitment Opportunities
- SKIN REDNESS STUDY
- LAMELLAR/X-LINKED STUDY
San Antonio / San Diego / Chicago
- DARIER-WHITE / HAILEY-HAILEY DISEASE
Indiana University Research Center
- X-LINKED MALES STUDY
- HARLEQUIN ICHTHYOSIS MEDICAL RECORDS STUDY
Boston Children's Hospital
- STUDY FOR SJOGREN-LARSSON SYNDROME
Omaha, NE / Portland,OR / Pittsburgh, PA
- GENE DISCOVERY OPPORTUNITY
- ITCH STUDY
Miami Itch Center - University of Miami
- NEWBORN STUDY
- NS2 COMPOUND FOR SJOGREN-LARSSON SYNDROME