Soaring to New Heights

The Foundation for Ichthyosis & Related Skin Types gathers every two years to connect, learn, share, solve problems, advocate, and inspire each other.  Be a part of the magic when passionate people unite around a shared experience.

Benefits of Sponsorship:

• Engage with the ichthyosis community, including patients, parents, dermatologists, researchers, medical students and other stakeholders at the world’s largest gathering for those interested in this rare genetic skin condition.
• Inform and educate the ichthyosis community about your organization’s products, services, strategies, and new developments.
• Take advantage of a professionally-organized conference run by a neutral nonprofit where content is curated by the community.
• Meet with patients and families to learn about life with ichthyosis, its challenges, little victories and hopes for the future.
• Introduce your brand to a community looking for solutions and improvements in their day-to-day life with this management intensive condition.
• Learn from future users of your in-development treatments and products. Learn what’s most important to them.
• Give back to this active patient advocacy community.

Support for the conference is reinvested in the programming to make it more inclusive and ensure it delivers on its mission and objectives. 

     Estimated Number of Attendees: 300    

      Who Attends?     
Affected individuals, parents, families, dermatologists, researchers, med students     

Marketing Promotional Opportunities

Saturday Night Dinner and Entertainment                   $10,000               SOLD

Saturday night is the conference’s big event with dinner, volunteer awards, dancing and performances by the children. Surveys inform us it is a favorite year-after-year. Your sponsorship will ensure the night is the best ever with entertainment, karaoke, and great food. Most importantly, through the night, connections are made and bonds created that last a lifetime.

Benefits include:
•    Logo and link on conference web page
•    Sponsor recognition on conference app
•    Podium recognition during event
•    Signage and logo placement on video screen during event

Cross-Promotion of Pre-Approved Community Event      $5,000         2 AVAILABLE

Organizing an event for attendees? FIRST would be happy to help promote your event to our attendees. Only confirmed sponsors of FIRST National Conference 2024 are eligible for cross-promotion. Events may not over-lap with the main conference program on June 27 – 30.

Benefits include:
•    Event listed on the conference website
•    Event listed on the official conference schedule
•    Event listed in a shared pre-event promotional email
•    Optional: Event listed on the FIRST registration form for attendees to add it to their conference registration.

Sponsor-hosted Co-located Event Packages                               $25,000 or $35,000 

The opportunity to co-locate a meeting, patient advisory board, focus group or other event in the same venue as the FIRST National Conference 2024 can help you effectively reach a specific patient/parent community. Sponsor-hosted co-located event packages are solely available to level sponsors of the FIRST National Conference 2024. We have two set package options listed below.
Each package will include access to the room (1) hour prior to the start of the co-located event. Please select the package that best suits your needs, keeping in mind that we will not be able to accommodate package changes at a later date. Space will be assigned on a first come, first served basis.

Benefits include:
•    Event listed on the conference website
•    Event listed on the official conference schedule
•    Room rental, setup, access to existing conference wifi
•    AV services to include: (1) projector, (1) screen, wireless presenter, basic audio, (2) microphones, power
•    Coffee/tea/water setup
•    Meeting room and wayfinding signage

Conference Wellness Program Supporter                    $7,500                  1 AVAILABLE

Contribute to the holistic health and wellbeing of onsite attendees by sponsoring wellness initiatives throughout the conference. Activities are not finalized yet, but may include onsite “brain break” stations, guided mindfulness meditation sessions, chair yoga, community fun runs, etc.

Benefits include:
•    Logo and link on conference website
•    Sponsor logo recognition on attendee sign-up forms
•    Sponsor logo on onsite signage at wellness stations and activities
•    Sponsor recognition on website, conference app and printed schedules

Keynote Speaker                                                              $5,000                  1 AVAILABLE

The “can’t miss” focal point in the agenda which sets the tone for remainder of the schedule. A good storyteller with a message of positivity and inspiration is just what the conference wants and needs.

Benefits include:
•    Sponsor recognition slide with logo at the beginning of the keynote presentation
•    Sponsor listed with Keynote on conference schedule and app

Session Recording                                                        $5,000                          SOLD

Extend your presence long after the live conference concludes with the session recording sponsorship. All general session recordings will be published on the FIRST YouTube channel and website after the event.

Benefits include:
•    Sponsor recognition slide with the logo at the beginning of each video recording
•    Sponsor recognition in post-event email to attendees

Welcome Reception                                                      $3,000                            SOLD

Kick the conference off right with the Welcome Reception where old friendships are renewed and new ones begin.

Benefits include:
•    Welcome Reception listed on the official event schedule
•    Logo on the event web page
•    Branded signage during reception

Afternoon Snack Break                                                   $2,500                 1 AVAILABLE

Provide PM breaks to event attendees

Benefits include:
•    Breaks listed on the official event schedule
•    Logo on the event web page
•    Branded signage during breaks

For More Information Contact Christopher Boynton

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