FIRST hosts a 3-day national conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.

National Conferences are a fantastic opportunity for affected individuals and their families to meet and network with other affected individuals and consult with leading medical experts.  They connect those searching for information and support in living wih ichthyosis and related skin types.

The 22nd National Conference is planned for June 28-30, 2024!

Get the information here

Highlights from past conferences: Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!