Date: 01/12/2024

By Prasana Shirol, Rare Disease Advocate, Co-founder & Director – ORDI

Though life continues, the question lingers: Who after me? This isn’t just a challenge; it’s the daily reality for families grappling with rare diseases.

Read more: https://prasannashirol.com/blog/who-after-me-the-unspoken-dilemma-of-rare-diseases/?fbclid=IwAR2necUiis4ScJEGrLI7FkeIjjb1hC7F6_0Du9DWn43zoS1dfgtoKJrP7EU

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