Date: 10/11/2024

The FIRST Board of Directors is moving on to the next phase of its strategic planning process.  Work is completed on prioritizing strategies that will have the largest impact in assisting our community and developing better treatments and outcomes.

Members of your Executive Committee of the Board of Directors are leading groups charged with identifying tactics, initiatives, and/or collaborators to help achieve the priority.

If you are interested in participating in this process, please contact Chris Boynton at cboynton@firstskinfoundation.org and let him know which of the below priorities you are interested in.  Your input based on your experience and expertise will help shape the future of FIRST and the important work we do.

• • Website Upgrade – backend and content improvement. – Bailey Fabiano
  • Patient Empowerment -Develop more educational programs and materials, including mental health programs, self-advocacy, communicating with physicians, insurance issues, quality of life. – Beth Hampshire
  • Access to Experts (formal and Informal) - Help patients get in touch with experts, an experienced family. Build physician referral listing dramatically. A program to support the supporters. Building EDVYCE as a tool within MSAB. – Brian Stern
  • Dermatology Training - Work to increase education and awareness among dermatology residents and nurses. Encourage students to pursue careers in research. – Sean McTernan
  • Approving New Treatments - Increase advocacy with the FDA and NIH. Create relationships. Grow pharma partnerships – Jason Thogmartin