Date: 10/13/2020

PeDRA - See How Patients Can Help to Fuel Innovation and Participate in "The Big Study"

How Patients Fuel Innovation – Mini Series

Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection.

The Burden of Pediatric Skin Disease — the “Big Study”

What is the study about?

We hope to better understand the burden of skin disorders in school-age children, and how these skin disorders affect a child’s personal and social perceptions. We want to study the relationship between the burden and how severe or visible the skin problem is.

Who is this study for?

This study will enroll children ages 8 to 17 years of age with chronic and highly visible skin conditions, as determined by the physician.

Both the child and participating parent must speak English and be able to complete questionnaires about the child’s skin condition, social experiences, and quality of life.


Data collection is underway

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