Date: 06/05/2025

by Rob Wyer, Specialist in Rare Disease Engagement | EU JCA Patient Strategy | Digital Health Innovation

Precision in language is essential in the rare disease field, where accuracy can have life-changing consequences. Yet, for patients and families, the highly specialised terminology used by healthcare professionals can often feel like a wall rather than a bridge. Read more here https://www.linkedin.com/pulse/medical-terminology-rare-disease-patients-when-words-become-rob-wyer-otpte/?trackingId=tkzaTO5fTPGl9qRNVkb48w%3D%3D