Since its founding in 1981, the Foundation has been fortunate to have many friends who care about the FIRST's future. Through their thoughtfulness, FIRST has begun to receive many substantial gifts, which help to meet both current and long term needs for the continuation of the Foundation's mission. The opportunities for charitable gifts to FIRST are many and varied:

  • Securities
  • Tangible Assets
  • Bequests

It is the FIRST's hope that this webpage will generate conversations between you, your financial advisors, and the Foundation staff. You can become a partner in the Foundation's future through your planned gift. If you would like additional information on any aspect of giving to the Foundation, please contact the national office at 215.997.9400 or email your thoughts and questions. The staff will be glad to assist you.

Marketable Securities Any outright gift of appreciated securities is often an attractive way of realizing your charitable intentions toward the Foundation. Your gift of listed stocks, bonds, or other publicly traded securities may entitle you to a charitable income tax deduction of the full fair market value of the securities on the date of the gift, provided you have owned the securities for more than one year. An additional advantage of giving appreciated securities is that you may avoid capital gains tax by transferring the securities, rather than selling them and giving the Foundation the proceeds. Securities with a low cost basis relative to their current value make an excellent gift, which may also have positive tax implications for you. Securities held by your bank or brokers are the easiest to transfer to the Foundation. Advise your asset manager as to the number of shares of each security you wish to donate and if you have a preference on their use. Otherwise your gift will be used for our general operating fund. Your representative can coordinate this transfer by calling the FIRST's national office at  215.997.9400. Kindly talk with the FIRST before any transfer or selling of securities takes place.

Tangible Property You may wish to give personal property such as art objects, real estate or other tangible items of value. If the Foundation can use your gift to further its mission and you have owned the property for more than one year, you will be eligible for a fair market value charitable income tax deduction without incurring capital gains on any appreciation. You would receive gift credit from the Foundation for the fair market value of the property. To comply with recent IRS regulations on the donation of personal property, you may need to obtain a written valuation from a professional appraiser in order to properly claim the maximum tax benefit for your donation. The Foundation cannot be a party to the appraisal. If you hold tangible personal property that you believe will be of value to the Foundation, please contact the Foundation's national office at 215.997.9400 to discuss your gift.

Will/Bequests Your legacy will add to the financial stability of the Foundation. Your participation in this tradition of remembrance will help insure that there will be a financially strong and intellectually vigorous Foundation in the future. A bequest to the Foundation will also qualify your estate for an estate tax charitable deduction equal to the entire amount you bequeath. Bequests may take several forms. You may leave the Foundation a specific amount of cash, securities, or other property by designating a dollar amount, a particular asset, or a fixed percentage of your estate. You may make a bequest of all or a portion of your residuary estate after you have provided for other beneficiaries by specific bequests. The Foundation may be a contingent beneficiary of your estate if your named beneficiaries do not survive you. You may designate the Foundation to receive the remainder of a trust, which you establish in your will to provide for beneficiaries for life. The Foundation would then receive the balance of the trust after the death of the last beneficiary. Sample language for a general bequest: "I give {indicate here a dollar amount, a description of specific asset(s), and/or a fixed percentage of the rest, residue, and remainder of my estate} to the Foundation for Ichthyosis & Related Skin Types, Inc.,TM Colmar, PA, for its general purposes." Sample language for a bequest for a specific purpose: "I give {indicate here a dollar amount, a description of specific asset(s), and/or a fixed percentage of the rest, residue, and remainder of my estate} to the Foundation for Ichthyosis & Related Skin Types, Inc.TM Colmar, PA, to be used for {indicate here your intended use of the donation, such as research, community outreach programs, scholarships, education, publications, etc.}. If at any time, in the judgment of the Trustees of the Foundation, it is impossible or impractical to carry out exactly the designated purpose, the Foundation shall determine an alternative purpose as near as possible to the designated purpose." The Foundation's activities and programs may change over the years. Therefore, whenever you indicate a specific purpose for your bequest, it is advisable to grant the Foundation the authority to respond to those changing needs. This guarantees that the Foundation will always be able to benefit from your gift.

General Information FIRST is a federally recognized 501(c) (3) non-profit organization. Our federal tax identification number is 94-2738019.

The FIRST's national office is located at:

2616 N. Broad Street
Colmar, PA 18915
Contact: Madeline Bergman,

FIRST recognizes that making a planned gift to the Foundation is a very personal and private matter. The Foundation recognizes your privacy and will treat each gift with strict confidence. However, with your permission, the Foundation would welcome the opportunity to publicly thank you for your generous support and commitment to our mission. The Foundation's mission is dedicated to helping families with the genetic skin diseases collectively called the ichthyoses. The Foundation provides support, information, education and advocacy for individuals and families affected by ichthyosis. The Foundation supports research into causes, treatment and cure for ichthyosis.

A Note on Taxes Discussion of possible tax treatment of donations to the Foundation that appear in this writing represent the understanding of the Foundation regarding such matters, but they do not constitute financial or tax advice, and you should not rely upon those representations. Rather, before you proceed with any of the giving options discussed on this webpage, we suggest that you consult with your tax, legal, and investment advisors. They can assist you in giving to the Foundation in a manner most beneficial to you and your estate. You may wish to have your advisors contact the Foundation's national office directly so we may assist in the giving process.

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