• RAISE 2016
  • Conference 2016 Deadline
  • Tele-Ichthyosis
  • What is Ichthyosis
  • 35th Anniversary

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Upcoming Events & Latest News
FIRST CEO, Jean Pickford attends NIAMS Ichthyosis Round Table
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) held a roundtable discussion last week in Bethesda, MD, focused exclusively on ichthyosis. Read More
FIRST CEO, Jean Pickford attends NIAMS Ichthyosis Round Table
FIRST Publishes 2015 Annual Report
2015 Annual Report & Financial Statement Now Available Read More
FIRST Publishes 2015 Annual Report
National Conference Registration Deadline is June 8!
Just 4 weeks until the National Conference - San Diego. Don't wait. Registration closes June 8. Read More
National Conference Registration Deadline is June 8!
District Donuts & Step2 Team up to Raise Awareness
District Donut Shop in Washington DC & Step2 are holding a fundraising, till May 31, 2016. #ichthyosisawarenessmonth Read More
District Donuts & Step2 Team up to Raise Awareness
5/22 - FIRST to Know Conference Call, Occupational & Physical Therapy
The FIRST to Know calls are a great way to “meet” other families, individuals, and medical experts. Each call is centered on a topic or subject, and lasts for one hour. Read More
5/22 - FIRST to Know Conference Call, Occupational & Physical Therapy
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
May 1, 2016 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted