FIRST is a national non-profit organization connected to its members and families by the special skin and unique management needs of individuals affected with ichthyosis and related skin types.
Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Governed by a Board of Directors and guided by a Medical & Scientific Advisory Board, FIRST provides accurate and timely information to meet the medical, social, and educational needs of our community.
Patient Support Forum Planned for Dallas
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
May is Ichthyosis Awareness Month!
May 2, 2013 - From coast to coast, many members will be holding exciting awareness and fundraising events. Read More
May 2, 2013 - From coast to coast, many members will be holding exciting awareness and fundraising events. Read More
Tommy's Stadium Tour
April 8, 2013 - Tommy, MLB's Biggest Little Fan is touring ballparks across the United States! Read More
April 8, 2013 - Tommy, MLB's Biggest Little Fan is touring ballparks across the United States! Read More
Ichthyosis – A Part of Who I am
May 20, 2013 - "Having ichthyosis makes me special. It's just part of who I am." Read More
May 20, 2013 - "Having ichthyosis makes me special. It's just part of who I am." Read More
Yale Conducting Study of a New Topical Medication
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
FIRST to Know Conference Calls Planned
April 20, 2013 - It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. Read More
April 20, 2013 - It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. Read More
Only Skin Deep
May 1, 2013 - My interests, my relationships, my compassion, my laugh are among the many things that define me. Read More
May 1, 2013 - My interests, my relationships, my compassion, my laugh are among the many things that define me. Read More
Our Little Spitfire
May 3, 2013 - Our dermatologist told us about FIRST right away and they connected me with some other families affected by Harlequin, which has proved to be an incredible resource during this journey. Read More
May 3, 2013 - Our dermatologist told us about FIRST right away and they connected me with some other families affected by Harlequin, which has proved to be an incredible resource during this journey. Read More
