Upcoming Events & Latest News
2010 Family Conference Highlights
The 2010 FIRST National Family Conference was recently held in Orlando, Florida. As expected, this was the best attended and most exciting conference to date! Read More
The 2010 FIRST National Family Conference was recently held in Orlando, Florida. As expected, this was the best attended and most exciting conference to date! Read More
A new appointment for FIRST’s Executive Director
Jean Pickford appointed to NIAMS Advisory Council. Read More
Jean Pickford appointed to NIAMS Advisory Council. Read More
The FIRST offices have moved!
FIRST has grown so much in the past few years, we need more space. Read More
FIRST has grown so much in the past few years, we need more space. Read More
Educational Scholarships Available
Friends of FIRST will soon be able to apply for scholarships to help offset educational expenses. Read More
Friends of FIRST will soon be able to apply for scholarships to help offset educational expenses. Read More
Frontiers in Ichthyosis
Researchers from around the world met in Orlando before the Family Conference. Read More
Researchers from around the world met in Orlando before the Family Conference. Read More
Regional Support Network
The Regional Support Network is a place to come
together and support each other through the sharing of knowledge, experience, and advice. It is our hope for all who join this caring community will find comfort in knowing that you are not alone on your journey.










