FIRST is a national non-profit organization connected to its members and families by the special skin and unique management needs of individuals affected with ichthyosis and related skin types.
Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Governed by a Board of Directors and guided by a Medical & Scientific Advisory Board, FIRST provides accurate and timely information to meet the medical, social, and educational needs of our community.
2012 Family Conference Registration
This year's conference is in Denver from June 22 to 24! Read More
This year's conference is in Denver from June 22 to 24! Read More
Meet Nancy
When I was born 55 years ago I was “different.” I was hospitalized for four weeks before I went home to my parents, sister, and twin brother, who had normal skin. Read More
When I was born 55 years ago I was “different.” I was hospitalized for four weeks before I went home to my parents, sister, and twin brother, who had normal skin. Read More
Dennis Roop to be honored at Testimonial Dinner
FIRST and the Charles C. Gates Center for Regenerative Medicine & Stem Cell Biology will honor Dr. Roop on the eve of the Denver Family Conference. Read More
FIRST and the Charles C. Gates Center for Regenerative Medicine & Stem Cell Biology will honor Dr. Roop on the eve of the Denver Family Conference. Read More
Ichthyosis Awareness Month Activities
Ichthyosis Awareness Month is here! FIRST and many of our members have events planned to celebrate. Read More
Ichthyosis Awareness Month is here! FIRST and many of our members have events planned to celebrate. Read More
Education Opportunity for Physicians
CME credit for FIRST/University of Colorado Denver School of Medicine Grand Rounds. Read More
CME credit for FIRST/University of Colorado Denver School of Medicine Grand Rounds. Read More
Ichthyosis and Hearing Loss Survey
Here's your opportunity to help us better understand how ichthyosis affects your hearing. Read More
Here's your opportunity to help us better understand how ichthyosis affects your hearing. Read More
