Contact:  Maureen Neville, Communications Director

Resident of Jackson with Rare Skin Disease Awarded UFIRST Scholarship

Jackson, TN (October 30, 2014)Elizabeth Joyner, of Jackson, received a 2014 UFIRST Scholarship for the second year.  This award is granted by the Foundation for Ichthyosis and Related Skin Types (FIRST). Elizabeth is affected with ichthyosis vulgaris, a rare, genetic skin disorder characterized by dry, cracked, scaling, and thickened skin.

When asked about her goals and aspirations Elizabeth replied, “I look forward to teaching or working with students in whatever setting God calls me to.  I can use a degree in education as a teacher in the classroom as well as a youth leader at a church.  I hope to be able to use what I have learned to encourage students and let them know they are all special in God’s eyes.”

The UFIRST Scholarship Program provides the opportunity for students affected with ichthyosis to achieve their highest educational potential,” said Jean Pickford, Executive Director of FIRST.  “Elizabeth is attending Union University and we are thrilled to support her as she continues with her degree.”

According to FIRST, each year, more than 16,000 babies are born with some form of ichthyosis, of those, approximately 300 are born with a moderate to severe form.  This disease affects people of all ages, races, and gender.

About the Foundation for Ichthyosis & Related Skin Types, Inc.®
The Foundation for Ichthyosis & Related Skin Types, Inc.®(FIRST) is the only nonprofit foundation in the United States dedicated to families affected by the rare skin disorder ichthyosis.  Approximately 300 babies each year are born with a moderate to severe form of ichthyosis.  FIRST educates, inspires, and connects those touched by ichthyosis and related disorders through emotional support, information, advocacy, and has supported more than $1.4 million in research funding for better treatments and eventual cures.  For more information, call toll-free at 1.800.545.3286 or visit


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