• RAISE 2016
  • Tele-Ichthyosis
  • What is Ichthyosis
  • 35th Anniversary

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Upcoming Events & Latest News
2016 UFIRST Scholarship Recipients Announced!
Join us in congratulating 19 outstanding students for receiving the UFIRST Scholarship award! Read More
2016 UFIRST Scholarship Recipients Announced!
FIRST CEO, Jean Pickford attends NIAMS Ichthyosis Round Table
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) held a roundtable discussion last week in Bethesda, MD, focused exclusively on ichthyosis. Read More
FIRST CEO, Jean Pickford attends NIAMS Ichthyosis Round Table
FIRST Publishes 2015 Annual Report
2015 Annual Report & Financial Statement Now Available Read More
FIRST Publishes 2015 Annual Report
District Donuts & Step2 Team up to Raise Awareness
District Donut Shop in Washington DC & Step2 are holding a fundraising, till May 31, 2016. #ichthyosisawarenessmonth Read More
District Donuts & Step2 Team up to Raise Awareness
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
May 1, 2016 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
Rare Disease Family Camp Offered!
April 13, 2016 - The Hole in the Wall Gang Camp is partnering with NORD to offer the first-ever Rare Disease Family Camp. Read More
Rare Disease Family Camp Offered!
Darier-White / Hailey-Hailey Disease Patient Recruitment
March 22, 2016 - Have you been diagnosed with Darier-White or Hailey-Hailey Disease? If so, you may be eligible to participate in a clinical research study! Read More
Darier-White / Hailey-Hailey Disease  Patient Recruitment