Upcoming Events & Latest News
Celebrate Ichthyosis Awareness at 2 Ball Parks
FIRST is sponsoring Night at the Ballpark events this spring. Read More
FIRST is sponsoring Night at the Ballpark events this spring. Read More
FIRST to Know Conference Call Planned
Ichthyosis and the Workplace: A Discussion on How to Manage Your Job While Living with Ichthyosis Read More
Ichthyosis and the Workplace: A Discussion on How to Manage Your Job While Living with Ichthyosis Read More
2012 Family Conference Scholarship Deadline is February 1!
Don't delay, download the scholarship application today. Read More
Don't delay, download the scholarship application today. Read More
FIRST Member hosts online sales to benefit the Foundation
Grandmother of affected boy operates a shop on etsy.com. Read More
Grandmother of affected boy operates a shop on etsy.com. Read More
2012 Research Grant Application Now Available!
The deadline to submit LOI to the Foundation is February 21, 2012. Read More
The deadline to submit LOI to the Foundation is February 21, 2012. Read More
2012 Family Conference Registration is Now Open!
Start making your plans to travel to Denver this summer! Read More
Start making your plans to travel to Denver this summer! Read More
Regional Support Network
The Regional Support Network is a place to come
together and support each other through the sharing of knowledge, experience, and advice. It is our hope for all who join this caring community will find comfort in knowing that you are not alone on your journey.











