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Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

Upcoming Events & Latest News
FIRST Announces 2014 UFIRST Scholar Recipients
September 16, 2014 - FIRST is proud to announce the ten 2014 scholarship recipients of the UFIRST Scholars Award. Read More
FIRST Announces 2014 UFIRST Scholar Recipients
New Survey on “Ichthyosis Research Prioritizing” from the ASIC and AEDV
September 16, 2014 - Imagine there is funding for only 10 research studies and a need to prioritize the most important uncertainties. What type of ichthyosis research would you support? Read More
New Survey on “Ichthyosis Research Prioritizing” from the ASIC and AEDV
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
September 15, 2014 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
A Community Unites at Dane’s Friends for FIRST Concert
September 15, 2014 - It was an evening of music and magic, wrapped in the bond of a community that cannot be broken. All of the attendees had been personally touched by the story of Dane Phelps. Read More
A Community Unites at Dane’s Friends for FIRST Concert
Highlights from the 2014 National Family Conference in Indianapolis!
July 1, 2014 - The conference, held in Indianapolis, was filled with workshops, panel discussions, entertainment, and special opportunities for connection, was an astonishing success! Read More
Highlights from the 2014 National Family Conference in Indianapolis!