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Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Upcoming Events & Latest News
2015 UFIRST Scholar Recipients Announced
June 5, 2015 - FIRST is proud to announce this year’s 11 scholarship recipients from the UFIRST Scholars Program. Read More
2015 UFIRST Scholar Recipients Announced
Another Successful Beach Run & Walk in New York
May 25, 2015 ~ The event was held in honor of 1st Lt. Michael LiCalzi who died in action in Iraq on May 11, 2006. Read More
Another Successful Beach Run & Walk in New York
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
May 1, 2015 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
The Facts About Ichthyosis
April 29, 2015 - FIRST created information dispelling the myths associated with ichthyosis for members of the media as a quick reference. Our friends and members can also make use of this. Read More
The Facts About Ichthyosis
Grand Opening of Charles C. Gates Biomanufacturing Facility
April 24, 2015 - An Update from Dr. Dennis Roop, Director, Charles C. Gates Center for Regenerative Medicine Read More
Grand Opening of Charles C. Gates Biomanufacturing Facility