Educate. Inspire. Connect.

Learn more about the global leader in ichthyosis advocacy.

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What is Ichthyosis?

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Raising hopes one story at a time.

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Join the New GENEration

Of Ichthyosis Research

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Who is FIRST?

Discover all the benefits of connecting with the Foundation for Ichthyosis and Related Skin Types (FIRST). Listen to what affected families, individual patients, and the medical community have to say about being a part of FIRST and taking advantage of FIRST's resources, like research grants, educational materials, and special patient-centric meetings and conferences. Learn why FIRST is the global leader in advocacy for ichthyosis and related skin types.

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

RAISE. Awareness. Funds. Hope.

Join the National Online Campaign

RAISE. is FIRST’s national online fundraising campaign encouraging people from all across the world to join together and raise awareness, funds, and hope for all those affected with ichthyosis. Plus, it’s so simple to participate. FIRST provides a step-by-step guide on how to create your own personal RAISE. donation weblink (with your photos, your videos, your story). So easy, you’ll be sharing it with family, friends, and friends of friends in just minutes!