• Research
  • Tele-Ichthyosis
  • What is Ichthyosis

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Upcoming Events & Latest News
FIRST Testimonial Dinner to Honor Kelly and Mark Klafter
July 25, 2015 - Kelly and Mark Klafter will be honored at the 2015 Testimonial Dinner for their unprecedented support of FIRST. Read More
FIRST Testimonial Dinner to Honor Kelly and Mark Klafter
New Research Update from FIRST Grant Recipient, Dr. Bob Rice
July 21, 2015 - Structural and BioChemical Changes Underlying a Kera-Derma like phenotype in mice lacking suprabasal AP1 transcripter factor function. Read More
New Research Update from FIRST Grant Recipient, Dr. Bob Rice
2015 UFIRST Scholar Recipients Announced
June 5, 2015 - FIRST is proud to announce this year’s 11 scholarship recipients from the UFIRST Scholars Program. Read More
2015 UFIRST Scholar Recipients Announced
Another Successful Beach Run & Walk in New York
May 25, 2015 ~ The event was held in honor of 1st Lt. Michael LiCalzi who died in action in Iraq on May 11, 2006. Read More
Another Successful Beach Run & Walk in New York
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
May 1, 2015 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted