Upcoming Events & Latest News
UFIRST Scholars application is now available!
An opportunity for students affected with a form of ichthyosis or a related skin type to achieve their highest educational potential. Applications are now available Read More
UFIRST Scholars application is now available!
FIRST to Know Conference Call Planned
Ichthyosis and the Workplace: A Discussion on How to Manage Your Job While Living with Ichthyosis Read More
FIRST to Know Conference Call Planned
2012 Research Grant Application Now Available!
The deadline to submit LOI to the Foundation is February 21, 2012. Read More
2012 Research Grant Application Now Available!
2012 Family Conference Registration is Now Open!
Start making your plans to travel to Denver this summer! Read More
2012 Family Conference Registration is Now Open!
Family Game Night to be held in Ohio
Bassett Elementary School will donate proceeds to FIRST. Read More
Family Game Night to be held in Ohio
3rd Annual Maddie's Miracle will be held in Texas
Each year this event gets even better! Read More
3rd Annual Maddie's Miracle will be held in Texas
Study for a New Topical Medicine
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Study for a New Topical Medicine
Celebrate Ichthyosis Awareness at 2 Ball Parks
FIRST is sponsoring Night at the Ballpark events this spring. Read More
Celebrate Ichthyosis Awareness at 2 Ball Parks

Regional Support Network

The Regional Support Network is a place to come
together and support each other through the sharing of knowledge, experience, and advice. It is our hope for all who join this caring community will find comfort in knowing that you are not alone on your journey.

 

30th Anniversary