• Research
  • RAISE
  • Tele-Ichthyosis
  • Meet our Families
  • What is Ichthyosis

Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.

Upcoming Events & Latest News
Meet 2015 FIRST Research Grant Recipient, Dr. Brittany Craiglow
April 9, 2015 - Dr. Craiglow was awarded a $50,000 research grant for her collaborative study of newborn and early childhood complications that accompany the ichthyoses Read More
Meet 2015 FIRST Research Grant Recipient, Dr. Brittany Craiglow
Patient Support Forums are Taking Place Throughout the Country!
March 19, 2015 - Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community. Read More
Patient Support Forums are Taking Place Throughout the Country!
Aldeyra Therapeutics Opens Phase II of Clinical Trial
March 19, 2015 - The study is being conducted at the University of Nebraska Medical Center with FIRST MSAB member, Dr. Bill Rizzo as the Principle Investigator. Read More
Aldeyra Therapeutics Opens Phase II of Clinical Trial
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
February 1, 2015 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
FIRST Launches New National Fundraising Campaign - RAISE!
February 19, 2015 - RAISE is FIRST's new online national fundraising campaign encouraging people from all across the country to join together and raise awareness, funds, and hope. Read More
FIRST Launches New National Fundraising Campaign - RAISE!