2012 Family Conference Registration
This year's conference is in Denver from June 22 to 24! Read More
This year's conference is in Denver from June 22 to 24! Read More
FIRST is a partner in Rare Disease Day
February 29th 2008, a "rare day", was the First Rare Disease Day in Europe, organized by EURORDIS. Read More
February 29th 2008, a "rare day", was the First Rare Disease Day in Europe, organized by EURORDIS. Read More
UFIRST Scholars application is now available!
An opportunity for students affected with a form of ichthyosis or a related skin type to achieve their highest educational potential. Applications are now available Read More
An opportunity for students affected with a form of ichthyosis or a related skin type to achieve their highest educational potential. Applications are now available Read More
FIRST to Know Conference Call Planned
Ichthyosis and the Workplace: A Discussion on How to Manage Your Job While Living with Ichthyosis Read More
Ichthyosis and the Workplace: A Discussion on How to Manage Your Job While Living with Ichthyosis Read More
2012 Research Grant Application Now Available!
The deadline to submit LOI to the Foundation is February 21, 2012. Read More
The deadline to submit LOI to the Foundation is February 21, 2012. Read More
Family Game Night to be held in Ohio
Bassett Elementary School will donate proceeds to FIRST. Read More
Bassett Elementary School will donate proceeds to FIRST. Read More
Study for a New Topical Medicine
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Celebrate Ichthyosis Awareness at 2 Ball Parks
FIRST is sponsoring Night at the Ballpark events this spring. Read More
FIRST is sponsoring Night at the Ballpark events this spring. Read More
Skin Advocate App for iPhone is Now Available!
Allows dermatologists to quickly provide patients with support group information. Read More
Allows dermatologists to quickly provide patients with support group information. Read More
Regional Support Network
The Regional Support Network is a place to come
together and support each other through the sharing of knowledge, experience, and advice. It is our hope for all who join this caring community will find comfort in knowing that you are not alone on your journey.
