Founded in 1981To improve lives and seek cures for those affected by ichthyosis and related skin types.
|FIRST's Pivotal Role in the Ichthyosis With Confetti Story||Newborn and early childhood complications and comorbidities that accompany the ichthyoses.||Gene Therapy and Rare Disease|
|Topical Tazarotene for treatment of ectropion in ichthyosis||Topical Delivery of Keratin 10||Bathing Completes the Shedding Process...naturally|
|Studies on novel therapeutic options for epidermolytic ichthyosis affecting the skin barrier||Generating immortalized cell lines and iPS cells from EHK patients||Ichthyosis Incidence Study|
Surveys of the ichthyosis community, specifically individuals affected with ichthyosis and their families, have indicated that research is the primary area of interest and a top priority for funds donated to FIRST. Research is fundamental to our mission. Over the years, investigators have made novel advances into the causes and treatments for the ichthyoses.
FIRST has a proud history of funding research. For many years, FIRST funded research through the Dermatology Foundation. The Dermatology Foundation is a well-respected nonprofit organization, that is second only to the National Institutes of Health in the funding of dermatological research. To stimulate more interest and provide a focused direction, FIRST officially launched its own Research Grant Program in 2006. This program promotes and strengthens investigation into the causes, treatments, and potential cures for ichthyosis. Summaries of the many projects that have been funded by FIRST are available. Letters of intent will not be accepted for 2015.
In addition to the projects FIRST has funded, additional research articles about ichthyosis-related research are available.
Current Patient Recruitment Opportunities
|Harlequin ichthyosis medical records study||Boston Children's Hospital|
|Study for Sjogren-Larsson syndrome||Omaha, NE / Portland,OR / Pittsburgh, PA|
|Study for a new topical medicine for Netherton Syndrome||Yale University & Saint Louis University|
|Gene Discovery Opportunity||Yale University|
|Itch study||Temple University Dermatology|
|Blood Sample Collection||PrecisionMed|
|Newborn Study||Yale University|
|NS2 Compound for Sjogren-Larsson Syndrome||Aldeyra Therapeutics|