Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Bullet Points for Media
For additional information email Maureen Neville, FIRST Communications Director
February 12, 2015 - Be FIRST on the Dance Floor!
January 12, 2015 - Running for Rare at the Houston Marathon
November 3, 2014 - A Beach Bonfire and an Evening of Yoga
October 31, 2014 - UFIRST Scholarship Awarded in Grafton
October 31, 2014 - UFIRST Scholarship Awarded in Attleboro
October 31, 2014 - UFIRST Scholarship Awarded in Penryn
October 31, 2014 - UFIRST Scholarship Awarded in Jackson
October 31, 2014 - UFIRST Scholarship Awarded in Hilliard
October 31, 2014 - UFIRST Scholarship Awarded in South Abington Township
October 14, 2014 - Monsters Running for Lucky 13!
September 22, 2014 - Johnsonburg High School Hosts Benefit Concert for Extremely Rare Skin Disorder
September 1, 2014 - Community Joins Together to Support Rare Skin Disorder
March 27, 2014 - National Rare Skin Disease Conference comes to Indianapolis
March 18, 2014 - Famed Photog. to Keynote Rare Disease Conference
February 20, 2014 - Creating Awareness at the Gwinnet Gladiators
November 20, 2013 - National Nonprofit to Partner with Boston Celtics
October 29, 2013 - Grassroots Fundraising Record Shattered!
October 24, 2013 - Running for Rare Disease in Hagerstown, Maryland
October 8, 2013 - Monsters Running in Friendswood, Texas
May 25, 2013 - Woman with Harlequin Ichthyosis Delivers a Healthy Baby Boy!
April 15, 2013 - May is Ichthyosis Awareness Month
March 20, 2013 - Tommy Gears Up for Baseball Season
February 26, 2013 - FIRST Partners with Major League Baseball Teams
December 18, 2012 - FIRST Receives $35,000 Donation from Brentwood Productions