Overheating

Many individuals with ichthyosis, particularly lamellar ichthyosis, do not sweat normally. The thickness of their skin and the scale does not allow their sweat to reach the surface of their skin and cool them effectively. In very hot and humid weather they are at risk for overheating, heat exhaustion, and heat stroke. 

 

Strategies for avoiding heat emergencies:
  • Limit physical activities and outdoor activities to the coolest parts of the day, before 10:00 a.m. and after 2:00 p.m.
  • If possible, seek out air-conditioned spaces during the hottest part of the day, 10:00 a.m. to 2:00 p.m. If you cannot be in air-conditioning, use a fan to keep air circulating around you, stay out of the sun, and rest.
  • Drink lots of fluids, more than you think you need. Avoid caffeine and alcohol, which can be dehydrating.
  • Use a pool, wading pool, lawn sprinkler, bathtub, or shower for frequent cooling dips.
  • Wear a hat and sun protective clothing when you do need to be outdoors. Loose natural fiber clothing in light colors will help you feel cooler than dark, tight-fitting, synthetic fiber clothes.
  • Use cool packs, cooling scarves or other cooling products, and spray bottles of ice water to cool down.
 Early Symptoms of a Heat Emergency
  • Dizziness
  • Fatigue
  • Muscle cramps
  • Nausea
  • Thirst
  • Feeling weak and light-headed
Later Symptoms of Heat Exhaustion
  • Cool, pale skin
  • Large pupils
  • Headache
  • Nausea and vomiting
  • Irrational behavior
  • Unconsciousness
Symptoms of Heat Stroke
  • Dry, hot and very red skin
  • Fever
  • Dark urine
  • Extreme confusion
  • Rapid, shallow breathing
  • Rapid, weak pulse
  • Small pupils
  • Seizures
  • Unconsciousness
First Aid for Heat Emergencies
  • Remove person from the heat to a cool place where they can lie down with their feet elevated about 12 inches.
  • Apply cool wet cloths (or cool water directly) to the person’s skin and use a fan to help the water to evaporate and lower their temperature. Place cold compresses on the neck, groin and armpits. Do not use alcohol rub.
  • Give the person cool water to sip, Gatorade or slightly salted water (1 teaspoon salt per quart of water). Give ½ cup every 15 minutes. Do not give salt tablets, alcohol or caffeine.
  • Seek medical help immediately if the person shows signs of shock (bluish lips and fingernails, and decreased alertness), has a seizure, or loses consciousness.
Sun Protection and Cooling Products
02-Cool
1415 N. Dayton Street
Chicago, IL 60642
312.951.6700
www.02-cool.com

 

50-Degree Company
Cool Zone cooling seat for car, truck, or boat
315 Stan Drive
Melbourne, FL 32904
321.956.0050
www.50degree.com

Akemi Inc.
Body Cooler
8700 Commerce Park Drive
Suite 212
Houston, TX 77036
800.209.2665
www.bodycooler.com

Arctic Heat USA
Cooling vests, neck wraps, cooling tubes, cooling caps
246 A. Third Avenue
Westwood, NJ 07675
201.829.0026
www.arcticheatusa.com

Cool Sport
Cool Vest Classic
2008 W. Carson St., Ste 211
Torrance, CA 90501-3297
310.618.1590
www.coolsport.net

Coolibar
2401 Edgewood Avenue S
St. Louis Park, MN 55426-2860
952.922.1445

DB Mist Systems
Personal Misters
952 Coral Kui Court
Gilbert, AZ 85233
480.926.2499
www.dbmistsystems.com

Gempler's
Hat and Caps, Cooling Hats & Vests, Fanny pack w/ water bottles
P.O. Box 44993
Madison, WI 53744-4993
608.662.3301
www.gemplers.com

Glacier Tek, Inc.
Cooling Vests
P.O. Box 120642
West Melbourne, FL 32912-0642
321.676.7799
www.coolvest.com

Heat Relief Depot
Personal Cooling Products
8300 Business Park Drive
Port St. Lucie, FL 34952
877.879.1450
www.heatreliefdepot.com
Misty Mate
Personal misters & Cooling Products
955 N. Fiesta Boulevard
Suite 1
Gilbert, AZ 85233-2807
800.233.6478
www.mistymate.com

Polar Products
Body Cooling Systems
540 S. Main Street, Suite 951
Akron, OH 44311
800.763.8423
www.polarsoftice.com / www.Msolutions.org

Pro-Kold Corporation
Cooling Vests
2607 N. Moore Avenue
Moore, OK 73160
405.237.1688
www.prokold.com

Rainbow Designs
Cooling Scarves
P.O. Box 1317
Citrus Heights, CA 95611-1317
916.725.1034

Sta-Cool Industries, Inc.
9102 Lingrove Road
Brooksville, FL 34613

Sun Clothing, Etc.
sun protective clothing for infant to adult
615 Halleck Street
Fredericksburg, VA 22407
540.809.4612
www.sunclothingetc.com

Sun Protected Clothing, Inc.
Full range of sun protective clothing, swimwear, etc. infant to adult
20235 N. Cave Creek Road #104-201
Phoenix, AZ 85024-4455
800.878.9600
www.sunprotected.com

Sunday Afternoons
Sun Protective Clothing
716 South Pacific Highway
Talent, OR 97540

TechNiche
Cooling Vests
1948 Kellogg Avenue
Carlsbad, CA 92008
760.476.0654

Wallaroo Hat Company
Sun Protective Clothing
1880 Flatiron Court
Boulder, CO 80301-2850
303.494.5949
 
Neither the Foundation, its Board of Directors, nor its Medical & Scientific Advisory Board endorse any of the above products or sites.

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