National Conferences

Our signature event, the National Conference is an amazing 3-day event that provides attending families an opportunity to forge unforgettable connections with each other, attend workshops and to consult with leading medical experts.

    San Diego here we come! June 24 - 26, 2016
(click here for all of the conference details and registration information)

San Diego Marriott Mission Valley

8757 Rio San Diego Drive
San Diego, CA  92108

Room Reservation Information

Room rate is $129 per night ++.
Here is the link to make reservations:

Group Reservations Toll Free: 877-622-3056
Group Reservations Local Phone: 619-692-3800

Conference Financial Aid Information

Register online to attend the 2016 National Conference-San Diego


Highlights from some past conferences:

Past conferences have been held:Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!

  • 1995 - San Diego, CA
  • 1993 - Chicago, IL
  • 1991 - Williamsburg, VA
  • 1990 - Orlando, FL
  • 1988 - New Haven, CT
  • 1986 - New Orleans, LA
  • 1985 - Las Vegas, NV
  • 1984 - Washington, DC
  • 1983 - Chicago, IL


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