Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
|Our signature event, the National Family Conference is an amazing 3-day event that provides attending families an opportunity to forge unforgettable connections with each other, attend workshops and to consult with leading medical experts.|
San Diego here we come! June 24 - 26, 2016
Details will be posted during 2015
Highlights from some past conferences:
Past conferences have been held:Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!