Founded in 1981To improve lives and seek cures for those affected by ichthyosis and related skin types.
|Our signature event, the National Conference is an amazing 3-day event that provides attending families an opportunity to forge unforgettable connections with each other, attend workshops and to consult with leading medical experts.|
Highlights from some past conferences:
Past conferences have been held: Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!