Have you been on a FIRST to Know?  It's a great way to connect...

Why Join A FIRST to Know Event?

Sharing tips, stories and challenges with others, makes living with ichthyosis just a little bit easier.   The FIRST to Know events are a great way to “meet” other families and individuals.   Each event is centered on a topic or subject, and lasts for one hour.  You can decide which topic is interesting to you and join in. You can be an active participant, or listen to what others are saying.  Do you have an idea for a FIRST to Know topic?  Contact the FIRST office via email or by telephone at 1-800-545-3286.

The past FIRST to Know events have been well received by our members.  It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges.  This is a great way to "meet" other individuals families.  All events are held in Eastern time.  We now have the opportunity to participate via video.  So you can either call in on your phone, or video call from your smart phone or a computer.

CLICK HERE For Upcoming Topics & Dates

Tips on how to make the most of the FIRST to Know Event

• Join from a quiet location.
• Consider keeping your phone/computer on mute (by pressing *6) to keep out extraneous background noise.
• You'll want to have as strong a connection to the conference as possible.

Past Events

2023

Dr. Leonard Milstone Retinoids and DISH - October 24, 2023

                               Yoga for Ichthyosis Series