Have you been on a FIRST to Know Call?
Why Join A FIRST to Know Call?
Sharing tips, stories and challenges with others, makes living with ichthyosis just a little bit easier. The FIRST to Know calls are a great way to “meet” other families and individuals. Each call is centered on a topic or subject, and lasts for one hour. You can decide which call is interesting to you and phone in. You can be an active participant, or call in and listen to what others are saying. All calls are held at 7:00 PM Eastern Time. The schedule with dates, topics, and call number is located at www.firstskinfoundation.org under the Conferences, Forums, and Meetings section.
Do you have an idea for a FIRST to Know topic? Contact Moureen Wenik, Program Director by email at email@example.com or by telephone at 1.800.545.3286.
The past FIRST to Know conference calls have been well received by our members. It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. There have been requests from our membership to add disease-specific calls to the calendar. This is a great way to "meet" other families with the same ichthyosis type. Dates and topics have been designated for the next series of FIRST to Know conference calls. All calls are held in Eastern time and are phone calls only, so you only need a phone, not a computer.
To participate in a call, simply dial: 862.902.0250. When prompted, enter the pin# 261618915.
When future calls are planned, the dates will appear here.
Tips on how to make the most of the FIRST to Know Call
- Call from a quiet location.
- Don't put your phone on hold if you have on-hold music or advertisements, as this will play back into the conference room.
- Disable your phone's Call Waiting (by dialing *70 before the conference number), otherwise the beeping may disrupt the call.
- Consider keeping your phone on mute (by pressing *6) to keep out extraneous background noise.
- You'll want to have as strong a connection to the conference as possible. For example, a landline will sound better than a cell phone or VoIP line.
Thursday, February 21 - Lamellar: Connecting Families Together
Tuesday, March 5 - Netherton syndrome: Connecting Families Together
Tuesday, March 26 - EI: Connecting Families Together
Tuesday, April 9 - X-linked: Connecting Families Together
Thursday, April 25 - Teens Rock: An Open Dialogue for Teens, with Teens
Tuesday, May 7 - Aging Skin: How is Your Skin Changing?
Wednesday, May 22 - Darier Disease: Bringing a Community Together
Thursday, June 6 - Vulgaris: Connecting with One Another
Tuesday, June 20 - Time for College: Transitioning from HS to College
Wednesday, July 10 - Infections: What Are They?
Thursday, September 12 – Lamellar Families
Tuesday, September 24 – Laundry and Clothes Care
Thursday, October 10 – EI Families
Tuesday, October 22 - Itch
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