Please note that these sites are in their native language

• ¿Quiénes somos?Fundación Alas para Pacientes con Ictiosis, API

• European Network for Ichthyosis
• Centre for Ichthyosis-Related Members - India
• ELA Begium - primarily for Refsum disease & other leukodystofies
• FIRST Asia Facebook Group
• French National Association of the Ichthyoses and Pathological Dry Skin
• Ichthyosis Support Group: (UK)
• Ichthyosis & Acral Peeling Skin Syndrome - Phillipines
• Netherlands Ichthyosis Network
• Network for Ichthyosis & Related Keratinization Disorders: (NIRK - German)
• New Zealand Support Group - Rachel Davidson
• Polish Ichthyosis Society
• Selbstilfe Ichthyose - (Self-help ichthyosis - Bavaria, Germany)
• SHHIRT -
  Samuel Hardgrave Harlequin Ichthyosis Research Trust
• Spanish Association of Ichthyosis
• Unione Italiana Ittiosi

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.