Over the years FIRST has collected and shared hundreds of “life stories,” as storytelling offers a meaningful way for
members to open up and communicate their most significant, emotional, and inspirational moments. Stories, after all, are the road to deep and meaningful connections. And, equally as important, stories can heal.  Over and over again we are thanked for the hope and encouragement these member stories offer to people affected by ichthyosis, all over the world.

If you have a story to share about living with ichthyosis (and some great pics to go along with it!) please send your submission of 500 words or less to Christine Wassel, Community Engagement Director,  cwassel@firstskinfoundation.org.   You will be contacted for approval and confirmation, prior to your story being published on our website, blog, social media channels, upcoming e-communications, or quarterly newsletter.

You can also share your story via video. Submit your video here.



Thank you for your interest in sharing your story with FIRST!

« Back to Meet Our Families

Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officals endorse any treatments listed here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.

Share This Page: