May is Ichthyosis Awareness Month!

Be a part of the worldwide effort. What will you do?

May is Ichthyosis Awareness Month (IAM). During May we encourage families and friends around the world to join together, use their voices, and raise awareness about the challenges and hopes of the ichthyosis community. Simply handing out educational information, or taking the time to talk to neighbors, friends, co-workers and community is one of the best ways to show you care.

Are You on Facebook? Twitter? Instagram?
IAM is Global! #ichthyosisawareness #FIRST #ichthyosis #IAM20

For 2020, FIRST ran an IAM logo contest. It is displayed above.

Download the Ichthyosis Awareness Month logo to use on your social media channels here

Ichthyosis Awareness Month 2020 was celebrated with two Release the Butterfly Virtual Concerts. Both, were wonderful evenings of music, community and fellowship. Enjoy the videos of each of the virtual concerts here.


In celebration of Ichthyosis Awareness Month, we are offering several items, sizes and colors. Grab yours so you can wear your favorite cause! Deliveries will begin in mid May, so don't delay!



Educating Your Local Community Virtually in 2020

Educating your local community is very important as it can make day-to-day life much easier for those affected.  In addition to sharing your story on social media (and tagging FIRST), one of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story. Or, contact a local radio station and let them know you or a family member has a rare skin disorder and that May is dedicated to raising awareness for research of better treatments and cures.

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