May is Ichthyosis Awareness Month!

Be a part of the worldwide effort.

May is Ichthyosis Awareness Month (IAM). During May we encourage families and friends around the world to join together, use their voices, and raise awareness about the challenges and hopes of the ichthyosis community. Simply handing out educational information, or taking the time to talk to neighbors, friends, co-workers and community is one of the best ways to show you care about those affected with ichthyosis.

Are You on Facebook? Twitter? Instagram?
IAM is Going Global! #ichthyosisawareness

This year we're connecting with ichthyosis advocates around the world. And social media is the quickest and easiest way to be a part of this worldwide IAM effort. Simply post a photo of you, your friend, relative or child with ichthyosis, using hashtag #IchthyosisAwareness. Be sure to include an IAM message, and your home town, state and/or country! Let the world know that you support someone with ichthyosis.

Educating Your Local Community

Educating your local community is very important as it can make day-to-day life much easier for those affected.  In addition to sharing your story on social media, one of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story. Or, contact a local radio station and let them know you or a family member has a rare skin disorder and that May is dedicated to raising awareness for research of better treatments and cures. Click this link for some more great tips for approaching local media and making your event the best it can be.

Please download this social media badges to use along with your IAM photo, story, or global message of empowerment.

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Social Media Profile Badge & Sample Social Media Post

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