Mission Statement & Core Values

Mission Statement

To improve lives and seek cures for those affected by ichthyosis and related skin types.


Core Values
Compassion - We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy.

Hope - While celebrating today's strengths and successes, we strive to convey to all individuals affected by ichthyosis that the future will be filled with friendship, support and a cure for ichthyosis.

Integrity - We will conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say.

Responsiveness - We provide accurate and timely information about ichthyosis to meet the medical, social and educational needs of our community.

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