Contact:  Maureen Neville

Grassroots Fundraising Record Shattered!
Jane’s 5K for a Cure raises $100,000!

Washington County, Hagerstown MD (October 29, 2013) – Margie Sherlock and family hosted a 5K race at Washington County Ag Center in Hagerstown, MD on October 27th, raising $100,000 for the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST). This is a record-breaking amount of money in regards to the 32 year history of grassroots fundraising for FIRST. Additionally, a sponsorship website was developed to collect donations leading up to the event.

Margie’s daughter, Jane, is affected with the rare skin disorder, Harlequin ichthyosis.  Ichthyosis is a family of rare, genetic skin disorders that causes the skin to become scaly, crack, and peel.  Along with a host of other disabling side-effects, ichthyosis also prevents the skin from sweating, which can lead to complications from overheating. 

“There is no known cure for ichthyosis, only treatments,” said Jean Pickford, Executive Director of FIRST.  “It is our hope that with the funds raised from Jane’s 5k Run we can continue to support more extensive research and provide services to the members of FIRST, taking us one step closer to finding a cure and better management of the disorder.  We can’t thank Margie Sherlock and her family enough for their efforts and support.”

According to FIRST, each year, more than 16,000 babies are born with some form of ichthyosis, of those, approximately 300 are born with a moderate to severe form.  This disease affects people of all ages, races, and gender. The disease usually presents at birth, or within the first year, and continues to affect the patient throughout their lifetime. 

For additional details about FIRST and this event, visit FIRST’s website, or email

Link to: Photos

About the Foundation for Ichthyosis & Related Skin Types, Inc.®
The Foundation for Ichthyosis & Related Skin Types, Inc.® (FIRST) is the only nonprofit foundation in the United States dedicated to families affected by the rare skin disorder ichthyosis.  FIRST educates, inspires, and connects those touched by ichthyosis and related disorders through emotional support, information, advocacy and has supported more than $1.4 million in research funding for better treatments and eventual cures. 


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