The Regional Support Network is a place to come together and support each other through the sharing of knowledge, experience, and advice. It is our hope for all who join this caring community will find comfort in knowing that you are not alone on your journey.
Why a Support Network?
Individuals with ichthyosis, and parents of children with ichthyosis, often have never met another person who shares the disorder. This can lead to feelings of isolation. The support network gives people an opportunity to talk to others who have experience living with ichthyosis. They can share feelings with others who understand and communicate a positive outlook.
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