Date: 02/28/2017

Do Your Share for Rare is a year-long Campaign for Rare Disease Public Awarenes. This PSA below launched today, Rare Disease Day, to announce the campaign, featuring the voices and stories of many living with a rare disease. It'purpose is to inspire and encourage those living outside of the community to get involved in ways big or small. It includes clips from  four wonderful families and individuals from the ichthyosis community.

National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, including ichthyosis and related skin types.

Share This Page: