May is Ichthyosis Awareness Month!
May is Ichthyosis Awareness Month. Join the Conversation.
It’s an online, awareness-raising conversation …all month long! There are lots of surprises in store. First, we’ll be posting three inspiring member stories (written in their own personal voice), each week, all month long. We’ve been reviewing stories for months, and can tell you firsthand, you won’t want to miss a single moment of their journeys. And from coast to coast, many members will be holding exciting fundraising events and providing a sneak peek at the festivities…right here! Plus we’ve invited the most influential members of the ichthyosis community to share their thoughts and hopes by submitting photos, videos, original blogs, or their favorite blogs from the past.
Please join us in the effort to connect, educate and inspire our mission, every step of the way. We invite you to check in with us as often as possible; join the conversation; share the personal journeys of our members…or start one of your own.