Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
|2008 National Family Conference, Chicago, Illinois
15th biennial National Family Conference, providing affected individuals and their families the opportunity to meet and network with people from around the world
|Educational Modules for Healthcare Professionals
Two modules available to health care professionals on issues relating to the diagnosis and management of ichthyosis patients.
|DVD - Life with Ichthyosis: A Teenage Perspective
Provides an upbeat, positive message for all affected individuals and their families on what it's like to grow up with ichthyosis.
| Website: scalyskin.org
Serves as the source for concise, accurate, and user-friendly information about the ichthyoses for the general public.