Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Urge your state representatives to introduce similar legislation.
In December 2009, the state of New Jersey passed bill SCR129 memorializing the United States Congress to support increased funding for medical research for ichthyosis. We are asking our members from every state to contact your local state senators and representatives to ask them to bring a similar bill to the floor in your state. With multiple states participating, our voice will be louder at the National level.