Dr. Amy Paller and Northwestern University/Lurie Children’s Hospital would like to invite you to participate in our research studies on ichthyosis. These studies involve completion of online surveys and more information can be found below.


 

 

Study 1:

Study 2:

  • If you are a parent/caregiver of an adolescent 12 years old and older with ichthyosis, please consider participating in our survey study on disease knowledge.
  • There are surveys for both the parent/caregiver and adolescent, and we ask that both you and your child with ichthyosis take the surveys and do so separately. You can help your child with explaining questions, but please do not answer questions for them.

     

    Parent disease knowledge link

    Child/adolescent disease knowledge link

Study 3:

  • If you are a parent/caregiver of a child 8 years and older with ichthyosis, please consider participating in our survey study on bullying.
  • There are surveys for both the parent/caregiver and child, and we ask that both you and your child with ichthyosis take the surveys and do so separately.  You can help your child with explaining questions, but please do not answer questions for them.

     

    Parent bullying survey link

    Child bullying survey link

Return to Clinical Trial Page

 

Share This Page:

Search