Advocacy Podcast - Find Your Rare
Advocacy is a big action but it is accomplished in so many different ways. FIRST member and mom Morgan VIllano was asked to be on a podcast on FINDYOURRARE on March 3rd at 8PM ET to talk about her daughter Addison who has Lamellar Ichthyosis.. This is a great way to spread awareness for ichthyosis and related skin types. Ichthyosis Awareness Month is coming up this May and this is a perfect example of advocacy. Best of luck! We'll be listening.
The Podcast will be Wednesday March 3rd at 8pm here: https://findyourrare.buzzsprout.com/?fbclid=IwAR2aGve_EwnBCOXO29CH1sJb63Yj08c7UtpGBncuOzXz_ob5cVuyV2EL0f4