Northwestern Ichthyosis Surveys for Adults, Parents and Children
Date: 07/21/2020
Dr. Amy Paller and Northwestern University/Lurie Children’s Hospital would like to invite you to participate in our research studies on ichthyosis. These studies involve completion of online surveys and more information can be found below.
Study 1:
- If you are an adult with ichthyosis, please consider participating in our survey study on quality of life:
Study 2:
- If you are a parent/caregiver of an adolescent 12 years old and older with ichthyosis, please consider participating in our survey study on disease knowledge.
- There are surveys for both the parent/caregiver and adolescent, and we ask that both you and your child with ichthyosis take the surveys and do so separately. You can help your child with explaining questions, but please do not answer questions for them.
Study 3:
- If you are a parent/caregiver of a child 8 years and older with ichthyosis, please consider participating in our survey study on bullying.
- There are surveys for both the parent/caregiver and child, and we ask that both you and your child with ichthyosis take the surveys and do so separately. You can help your child with explaining questions, but please do not answer questions for them.
