FIRST is excited to announce the beginning of a new KID research effort made possible with generous funding from  FIRST member Patti Brennan.

This is the beginning of a multi-year effort. There are three things I wanted to share with you:

  1. We are looking for families to participate in a 90-minute, recorded virtual discussion about KID. This will be led by me, Denise, and we  will discuss living with KID. This is geared toward uncovering those first data points that scientists need for developing therapies for KID. There will be a questionnaire sent out ahead of time. 

Are you able to participate? Please go here and share your availability:

  1. KID patients can also apply for funding to attend the FIRST National Conference through the National Conference financial aid fund!  We really want to make it easy for you ALL to get together with us this June in Providence.  Please email Lisa Breuning if you are interested in applying. The deadline to apply is March 18, 2022. Download the application form here.
  2. We have just opened this year’s research grant review process. We have noted there will be special consideration for investigations into KID syndrome.

For every skin type, we have to start somewhere. FIRST is thrilled to be making these steps with you, this year.

Special thanks to the Brennan family!

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